Owen has been at school everyday apart from Thursdays. He has a constant high temperature (Usually between 37 -38 degrees with 38.5 being the trigger to start heading into Emergency), which makes us as his parents, very, very twitchy, but we will all have to get used to this. We also had a Parent/Teacher interview one afternoon, and the verdict is that he just has slipped in nicely, exactly as we all would have wanted. We are so pleased, that he can get back to being a schoolboy again....
Thursday, Royal Childrens day. Leave home at 8.30am, back at 7.30pm. Another loooong day.... Theatre visit, lumbar puncture and catch up with Dr Waters. Everything is on track...
Day Oncology. Drugs into his Hickman line and then the dreaded monthly double injection, slowly into the thighs. I held his hands and fought back tears as he grimaced and squeezed mine. I have tears writing about this, because there is nothing more fearful in life than the smell of alcohol swabs and seeing 2 syringes sitting on a trolley waiting for you. And they are not the baby ones either. The anxiety levels go through the roof for myself and The Big O but he takes his injections without protest....
He waits 2 hours in case of an allergic reaction, then 250ml of blood over 2.5 hours.
Thank you to the wonderful nurses at the Childrens.... Thank you to Owen and all the other children who endure medical treatment for showing me what "tough" really means.....
2 comments:
Hi Owen,
I am so happy that you are back at school.
i hope you are having alot of fun with your friends at school.
Love Jessica
Dear tough Snowman.
Tell Dad he's a big pussy. Great to hear your school is still travelling well and you've fitted right back in. The needles won't keep going forever, so don't worry too much about them. You're a real fighter,we know.
Hang in there, and stay happy!
Best wishes from the Chocolate Pusher.
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