The Super Heroes..........!
In the background, there are 2 boys who we are trying desperately to allow to lead as normal a life as possible. They are never forgotten, yet they miss out on a lot and have their own stresses to carry.
Just a short post reminding us of how lucky we are...
Luke - Biggest Brother..... Luke is kicking butt this year. 13 years old now and the size of an 8 year old. Still does not talk but is making a lot of noise. We are hopeful. He needs 24 hour supervision and assistance with just about everything but he is happy, happy, happy, from the moment he wakes (6.30 onwards, so forget the sleep in) to when he is put in bed at 8pm. His new tricks.....: He smiles and fetches the towel off the rail when Joel asks for it after a shower. Offers his cheek to Lee and Owen for a kiss when they ask. Waves Goodbye. Feeds himself cereal and any meal that can be eaten with a spoon. Loves any vegetables that are orange.. pumpkin, sweet potatoe and carrots. Pushes you out of his way, especially if you are between him and one of his music toys. And gives Owen grief by tipping over his Lego containers. Luke doesn't seemed too fussed with everything going on.... although he shadows us, especially if I have not been at home for days because Owen is in Hospital. We love our Lukey....
Joel - Middle Bro.... The quiet achiever. Hampton Primary School Captain. Scholarship to St Leonards starting High School next year. Music , Piano, Guitar, Ukulele and singing. Starting to teach me chord progressions. Performed the National anthem in front of 50 Footy playing Dads, their families and spectators at the St Mary's Vs Hampton Primary grudge match. Not phased at all. Cool as a cucumber. School assemblies, school performances, school play, debating team. Academically kicking goals. Too easy....... Joel has missed out on a lot of activities and we have not been able to attend his school camp as promised, many of his performances, presentations, watched the School Soccer team make their way into the Finals (We will be at the Finals), swim carnivals, etc, etc, etc.... He seems fine with that. He wouldn't tell us if he was disappointed anyway. We are sure that once Owen moves into the Maintenance phase then hopefully, we can start being normal parents again and spend the time with him that he deserves. To say that we are proud of Joel is an understatement...
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