April 2012 - Tracking nicely. Exciting things coming....

April 2012 - Tracking nicely.

Well he is 2 years and 5 months since diagnosis and Owen is on track as Dr Waters had hoped.
Haven't blogged for a while as life has been business as usual. Thought I should update as some exciting things are happening soon.
Threw in a few photos as well. And some little anecdotes.

Our Family..Not stickers, LEGO.. Mum is not too happy about the champagne glass.....!

Owen's health has been GREAT.. Despite the tablets everyday, which he swallows without complaint, he is just fine. Dr Waters looks down his glasses at us when we talk him up and reminds us gently that he looks healthy but no child taking chemo is healthy on the inside. His immunity is compromised and bloods are still fighting their battle. There are constant reminders around us.

Looking after his Big Brother

The Warts...... He hates them and his body cannot fight them off, so it is off to a Professor in Dermatology to burn them off using acids, and liquid nitrogen. They are surprised at his pain threshold. The warts keep coming back. Hopefully when his chemo stops in a year, his immunity will take over and wipe them out. They have managed to control the warts on his face and feet for the time being,

Chicken Pox..... Chemo has wiped his blood clean of all the vaccines that he has had since birth. So any infectious disease is dangerous. A recent exposure to a child in class and off to Emergency where he is given a large injection full of antibodies to try to protect him temporarily. Isolation for 4 weeks from any activities with other Cancer buddies and Charities, and isolation rooms in Hospital when getting treatment. He dislikes isolation as he cannot catch up with nurses and Staff at the Hospital for his usual playful banter.

Tablets.. Plenty..... Some days just 2, other days 11 of them.. He has

Thursday Night tablets

Met from Maxy from Bondi Rescue.... Another show that he loved when he spent hours in bed. The Bondi Rescue Box Set (And Grand Designs) and he is happy. Drove to Sydney in the September Holidays and went to Bondi. There he was working... How lucky was that....! Turns out that he is an Ambassador for Canteen as well.

Monthly checkups and Chemo Injections int his Port.... 20ml of Vinchristine. A nasty medication that Owen gets once a month. We watch his skin for any breaking down of blood veins (crows feet), unusual rashes etc., and monitor his health. Last week was unusual with stomach pain and sweats at night, had trouble playing his first game of Soccer for the year and mild sunburn after an hour on the pitch on a beautiful autumn day. We sign documents allowing it to be used on Owen warning us of all the potential dangers and side effects. As you can see, the nurse wears gloves and an apron when handling it. 

Family Snap.....