Back into Royal Childrens. New round of Chemo in Day Oncology, a lumbar puncture in theatre under general anesthesia and a shot of chemo into the spinal fluid. In at 8.30am, home by 6pm. 9.5 hours in total. Patience is what is needed because there is a lot of waiting without knowing why.
Booked in again on Friday for the Dreaded Double injections into the thigh muscles, then the 4 hour wait in case of an allergic reaction.
Owen's school report came out and he is doing very well. Luckily, we have a bright little boy on our hands so there are no major concerns, considering how many days he has had off. His report said 28 days off and then there were 3 days last week, plus 8 days last school holidays.
A total of 41 days off. Or 8 weeks.........
Try constantly shuffling life, taking time off, holidays, reorganising everything, all at short notice. No wonder why we are all tired...
You make up the time on the weekends, in the evenings, miss out on sleep, whatever you can do.
And luckily for us, we believe that Owen is healthy physically and mentally.
One nurse in theatre who has watched Owen come through over the last 7 months commented that Owen is the healthiest Leukaemic child that she has seen. That is wonderful for us.
2 comments:
Lee & Clinton - you both do an AMAZING job! To "juggle" as you do, and still be "normal" is unreal. We are rapt Owen is doing so well. He is lucky to have such Wonderful parents xx
Dear Snowman's Dad,
Thinking of you all. Good luck with Double Shot Friday - not the kind of shots I'd prefer.
Take heart from the nurses comment regarding O's health - that is the sort of thing that is good to hear.
Best wishes as always,
TCP (shorthand, given recent unmasking..........)
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