Owen's Hickman line is sorted out at home once a week. The bandage is changed, the ends are replaced,
the line is flushed and blood is drawn to check that everything is clear, then an anti clotting fluid is put down the line. It takes about 30 minutes, lots of swabs, gloves etc. and the house smells like a hospital again reminding us that we are looking after a boy who is unwell..
Bloods are going down and his health is as well. More days off school. Today he was dizzy and had trouble walking, so another day in pyjamas. Looking forward to the end of this round of medication.
A big bag of all the stuff used to maintain Owen's Hickman line.
His hair is nearly ready for some product. It is thin and fine and nothing like the mop that he had originally.
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