Monday, August 9, 2010

7/8/10. Day 273. Sunday. Trying times

It has been a tough 3 weeks. And Owen has just been the soldier as always. In the last 3 weeks of school (15 schooldays) he has been away for 9.5 hays. Last week went as follows:
 Monday - School
Tuesday - Theatre (Lumbar Puncture), Day Oncology (Chemo and 2 bags of blood)
Wednesday - School. Noticed dried blood in his Hickman line bandage before he showered that night. Called the Hospital and they told us to come in the morning, unless his health deteriorates. Platelets must be dropping, and his blood is not clotting.
Thursday - Day Oncology (Blood test and a bag of platelets.)
Friday - Home, unwell.
Expected one day off school. Got 3 instead. A logistic nightmare.

However, he got through the weekend with headaches and stomach pain. Worked like a demon, trimming trees and cleaning up around the house and finished off doing his new 2nd favourite thing to Building - Cooking....!
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We are blessed.
We have befriended a family with a daughter 2 years younger than Owen, diagnosed at the same time, and she is fighting a lot harder......
A painful remainder that the stakes are high... 
Despite our struggles, O still tracks well, ticking the boxes. We have been waiting for his temps to rise, and they threaten to....., but they stay below 38.5. Each day we stay out of Emergency is a day worth celebrating.
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Is it George from Masterchef?
No.. Owen can grow his hair back......

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